We are so sorry to hear of your loved one’s illness!

 We are so sorry to hear of your loved one’s illness! Please know first and foremost we are lifting them, you, and your family up in prayer.

                                            

                                                  PC Sharon Talkington

 

Second, I see there is a GoFundMe set up. Please make sure they talk to a social worker and apply for uncompensated care. It can discount your hospital bill up to 100% and sometimes doctors will match that discount. GoFundMe can be a blessing but if the person is on a government program such as Medicaid or SSI, it can get complicated.

 

Here is an article with more information, in case you are interested.

https://helphopelive.org/is-fundraising-taxable-personal-income/

                                         

                                                      PC Sue Krug

 

I would encourage you or someone else in the family to check out setting up a Help Hope Live campaign. Help Hope Live is a trusted medical fundraising nonprofit that provides all of the support necessary to be successful in your fundraising. Because it is a nonprofit, donations can be tax deductible and you are also eligible to receive matching gifts from companies, which can add up quickly.

 

We have a campaign for Dave for unpaid medical needs and it has been a major blessing! We can’t say enough good things about Help Hope Live!

                                  

                                                  PC Sharon Talkington

 

Lastly, whether you start a Help Hope Live campaign or not, they have resource guides that are extensive to help you find resources in this time. Here is a link: 

https://helphopelive.s3.amazonaws.com/uploads/2020/07/HHL-Illness-Resources.pdf

 

 

 

                                               Watching Dave walk again!!!
                                                 

Dave's sister Ann and brother in law Gary with us. 

     So we were recently honored to be speaking at Stand with HPP Pittsburgh and Dave's sister and brother in law joined us for the meeting. They arrived early for lunch and Dave decided to show them a few new things he could do since starting treatment and a lot of physical therapy over 2 and 1/2 years. So he got up and began to walk around with his cane and they were so surprised his sister asked if she could take a video. Well she did and during the video Dave began to exceed her expectations and you can hear the tears of pure joy in the background. Lots of hard work in pt, treatment that took tons of things coming together to create, manufacture, bring to market and eventually Dave to take, lots of faith and courage on his and our part to walk out this journey, as well as friends family and an hpp community cheering us on and praying for us one step at a time. So this is a bit of the story behind the video. Dave has worked so hard and has new walking stills but for longer distances he will still need his power chair as this is a treatment and not a cure. We need the van by winter. So if you would like to help us please click this link. It's tax deductible and they also participate in employee matched gifts. Please share with your friends who may be looking for end of the year tax deductions. Thank you all for your love and support! We feel it! <3

                                               

                                                      Copyright SHARONNMYLIFE  INC 2018 | all rights reserved

Unless otherwise stated, all words and photos on this blog are my own. If you use a photo, please link back to this site to provide credit. Under no circumstances, should the text of this blog be copied and re-posted elsewhere unless you have permission from me to do so. Please note, hurtful or offensive anonymous comments will be blocked.

   

                                                     

     URGENT! Dave and the Handicap Van 

     Have you ever run a marathon? If you haven’t have you ever had to persevere through challenging circumstances for an extended period of time? Well that has been Daves’s life with hypophosphatasia (hpp). Hpp is not a 50 yard dash, it’s a marathon. You have to train with physical therapy, do exercises, take breaks, rest, get good nutrition, medical care, tests, medicine, procedures, even surgeries sometimes, and start it all over again. At times it can be very exhausting and discouraging. Rare diseases are like that in that they are challenging, stretching, and life long. 

                                                   A recent accomplishment in physical therapy for Dave!!!

                                                         

      We have been very encouraged with the treatment and physical therapy Dave has been receiving. It has helped him to be able to travel and share his hpp story with others who also have hpp, their loved ones, and care givers. Sharing your story can be encouraging to others that they are not alone, someone else understands my struggles, if Dave can live a fulfilling life I can too! Everyone has challenges in life, one of Daves happens to be hpp. 

                                             

        A recent opportunity for Dave to share his hpp story with others to bring hope, education, and connection.

      Another marathon we have been running has been raising money for a new handicapped van purchase.The grant we applied for had too many applicants and they could not help us. We would like to thank Chive Charities for even accepting our application for consideration and we are thankful for all the can help they have provided others with rare diseases, veterans, first responders, and special education this year! 

                                                                

                                               Dave's current van that needs replace by this winter. 

      Here’s the run down of where we are at now: Through Daves Help Hope Live account we have raised $ 6,926. Through Daves Stable account we have raised $9,250. Our goal is to raise $75000 by winter to purchase a new handicapped van with all the features Dave requires. Thanks to all who have helped us so far! Please consider, like, share, and give. Gifts to Help Hope Live are tax deductible and they also participate in companies matching gifts. Time is running out so whatever funds we raise will be used to purchase a new or used van by winter!

                                                          One possibility for a new van for Dave.

     Last, but certainly not least, hpp awareness day is Oct 30. If you know of someone who is fracturing bones and they don’t know why ask their doctor to check their alp. It’s a routine blood test most people have had. If it’s low alp it might be hpp. To help us fight hpp please consider a gift to www.SoftBones.org.

                                

Do you break bones often? What’s your alp? Is it hpp? 

Copyright SHARONNMYLIFE  INC 2018 | all rights reserved

Unless otherwise stated, all words and photos on this blog are my own. If you use a photo, please link back to this site to provide credit. Under no circumstances, should the text of this blog be copied and re-posted elsewhere unless you have permission from me to do so. Please note, hurtful or offensive anonymous comments will be blocked.

                                    David Talkington and Van update

     

Dave in our current van "Captain Cave Man" aka "Goldie"

      Well this spring came with lots of weather and changes. Dave is working hard in physical therapy for neck range of motion and it seems to be working. We are thankful he has this opportunity and that he is making such great progress.

             

     Earlier this month we started a new season in life. We were honored to be sharing our hpp (hypophosphatasia) story of hope with others in the hpp community. Our heart is to encourage others that life with hpp is worth living even though there are some adjustments and bumps in the road to negotiate at times that are different from other's life challenges. I can't tell you how encouraging it is to share your story with others and listen to others share theirs. This is something we can do to give back to the community that has given so much to cheer us on and we are honored to do so!

                                                     

  Photo Credit- Yudelkis Exposito Ledesma 

                                                                     

     Many of you have asked for an update on the van and the fundraising for the new one. Since our last update Worth While Life  had a bowling fundraiser and raised $7000 that they deposited in Dave's Stable account for the van! We also received an anonymous check for $2500 this week for the van to the Stable account!!! We are so thankful for the love and kindness that has been poured out toward us! It has been truly humbling. The Help Hope Live account has grown to over $6030 as of today!!!  Words can not express how thankful we are to the many family, friends, and others we have not met yet that have given towards this project. Another thing you can do is share our story or consider a fundraiser to help us reach our goal. Just contact me if you are interested.

                                                   

So thankful for our family and how supportive they are! Sign by Kim Justice of Simply Sisters

       Our latest step is to apply for a grant to help with the van since, as you can see, this is a large project. We finally found a grant that could fit but it takes months for them to process to see if Dave qualifies. We were able to submit this application yesterday and couldn't be more excited. In the meantime we continue to share the Help Hope Live website for any who would like to donate financially and follow our progress. It is tax deductible, which is a huge bonus! They also do matching funds through participating companies.The website also has info for sending checks as well if that is what you prefer. We appreciate all who are praying, sending positive thoughts, and cheering us on in this marathon project that we pray will soon be accomplished as our other van is getting pretty tired. We are thankful for our old van but our season with it is coming to an end soon and we are looking forward to the huge blessing that our new van will be.

                                                 

Dave driving to his next destination! This is a great new season for us! 

June 2018

                                                     Copyright SHARONNMYLIFE  INC 2018 | all rights reserved

Unless otherwise stated, all words and photos on this blog are my own. If you use a photo, please link back to this site to provide credit. Under no circumstances, should the text of this blog be copied and re-posted elsewhere unless you have permission from me to do so. Please note, hurtful or offensive anonymous comments will be blocked.