URGENT! Dave and the Handicap Van 

     Have you ever run a marathon? If you haven’t have you ever had to persevere through challenging circumstances for an extended period of time? Well that has been Daves’s life with hypophosphatasia (hpp). Hpp is not a 50 yard dash, it’s a marathon. You have to train with physical therapy, do exercises, take breaks, rest, get good nutrition, medical care, tests, medicine, procedures, even surgeries sometimes, and start it all over again. At times it can be very exhausting and discouraging. Rare diseases are like that in that they are challenging, stretching, and life long. 

                                                   A recent accomplishment in physical therapy for Dave!!!

                                                         

      We have been very encouraged with the treatment and physical therapy Dave has been receiving. It has helped him to be able to travel and share his hpp story with others who also have hpp, their loved ones, and care givers. Sharing your story can be encouraging to others that they are not alone, someone else understands my struggles, if Dave can live a fulfilling life I can too! Everyone has challenges in life, one of Daves happens to be hpp. 

                                             

        A recent opportunity for Dave to share his hpp story with others to bring hope, education, and connection.

      Another marathon we have been running has been raising money for a new handicapped van purchase.The grant we applied for had too many applicants and they could not help us. We would like to thank Chive Charities for even accepting our application for consideration and we are thankful for all the can help they have provided others with rare diseases, veterans, first responders, and special education this year! 

                                                                

                                               Dave's current van that needs replace by this winter. 

      Here’s the run down of where we are at now: Through Daves Help Hope Live account we have raised $ 6,926. Through Daves Stable account we have raised $9,250. Our goal is to raise $75000 by winter to purchase a new handicapped van with all the features Dave requires. Thanks to all who have helped us so far! Please consider, like, share, and give. Gifts to Help Hope Live are tax deductible and they also participate in companies matching gifts. Time is running out so whatever funds we raise will be used to purchase a new or used van by winter!

                                                          One possibility for a new van for Dave.

     Last, but certainly not least, hpp awareness day is Oct 30. If you know of someone who is fracturing bones and they don’t know why ask their doctor to check their alp. It’s a routine blood test most people have had. If it’s low alp it might be hpp. To help us fight hpp please consider a gift to www.SoftBones.org.

                                

Do you break bones often? What’s your alp? Is it hpp? 

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