Dreams Come True and Miracles Happen

     Over 20 years ago an endocrinologist told my husband and I you will never see a drug for the disease you have called Hypophosphatasia in your lifetime. Well we understood the Dr and what she told us was true based upon facts at the time but we chose to leave that office and pray for a miracle. We were asking that the impossible would become possible not just for my husbands sake but for others around the world that die or suffer from Hypophosphatasia on a daily basis. We had many family and friends who started this journey of prayer when my husband was born and many who have joined us throughout the journey of our lives or for just a season and we are truly grateful for their prayers, love, support, and for cheering us on!
     This week not only did a miracle happen but a dream also came true. Several years ago I had a dream that my husband was in a children's hospital for a week and they were running many tests. At the end of the week they told us that next week they would start the treatment and as they left the room I asked, "What is the treatment?" There was no response. You know that feeling when you're reading a book and you get to a really great part so you want to read the next chapter but for some reason you can't? Well this dream was a great chapter and I thought it was so weird that it had to be God telling me something. Hold onto your faith...hope a little longer....pray and believe a bit more... I told a friend the dream and she commented on how strange it was. It was pretty strange in my mind but time went on and I found out that there was a drug trial. It started around the time I had the dream, only babies and children were primarily the ones being put on the drug, and it saved lives! I cried tears of joy when I saw the first pics and videos of babies and children whose lives had been improved by the drug now known as Strensiq by Alexion Pharma. This was a miracle that we had been praying for and what I believe my dream was about! This week the FDA approved the drug Strensiq for perinatal onset, infantile onset, and juvenile onset Hypophosphatasia. There are many pieces to the puzzle and people who contributed to research, testing, and many families who paid the ultimate sacrifice to keep trying for a treatment. Thank you just doesn't seem to do it justice but we are truly grateful for all things coming together that have brought us to this day. Today, Oct 30 is Hypophosphatasia awareness day. Thanks to Deborah Sittig of Soft Bones here is some information she shared about  how to help us spread the word. Please feel free to share this post.

"Today is HPP Awareness Day! 

HPP HEROES, UNITE!
Join the Uncommon Strength Global Mission

UNCOMMON STRENGTH CAMPAIGN
As a HPP Hero, your mission is simple – unite and inspire those impacted by hypophosphatasia (HPP) around the globe and raise global awareness for HPP.

Living with or caring for someone with HPP isn’t always easy. It demands a great deal of courage and inner strength day in and day out. It also takes a bold unified effort.

On HPP Awareness Day (October 30th), we’re encouraging the world to join the fight. Whether it’s a caregiver, a friend, a family member, a co-worker, or your child’s teacher, let them know about this important cause. Together we can have a huge impact. HPP Heroes, Unite!

WAYS YOU CAN TAKE ACTION
Ø Support HPP advocacy organizations around the globe by signing their international petition to officially recognize October 30th as Hypophosphatasia Awareness Day.
Ø Encourage friends and family members to visit the Uncommon Strength campaign website – www.EveryDayWithHPP.com – and join the HPP Hero community.
Ø Build your own personal HPP Hero on www.EveryDayWithHPP.com and encourage your friends and family members to do the same.

Visit our Soft Bones website for more information www.SoftBones.org

www.EveryDayWithHPP.com"

copyright SHARONNMYLIFE  INC 2016 | all rights reserved

Unless otherwise stated, all words and photos on this blog are my own. If you use a photo, please link back to this site to provide credit. Under no circumstances, should the text of this blog be copied and re-posted elsewhere unless you have permission from me to do so. Please note, hurtful or offensive anonymous comments will be blocked.